AFTDA

The Australian Fronto-temporal Dementia Association   (AFTDA)

AFTDA is a newly formed Association for Frontotemporal Degeneration of Australia with similar goals as the AFTD in the USA. The AFTDA is a registered non-profit carer driven organisations whose mission is to:

  • Establish Carer groups where ever there is a need in Australia – if you know someone in Australia with FTD we invite their Carers to register here
  • Establish a register¬†of those living with FTD and their primary Carers in Australia
  • Coordinate efforts with peak dementia bodies to disseminate information, education and support to persons diagnosed with an FTD disorder, and for their families and caregivers
  • Help Educate physicians and allied health professionals about Frontotemporal degeneration and how to improve patient care
  • Bring about greater public awareness of the nature and prevalence of Frontotemporal degeneration and the needs of those who are coping with it
  • Lobby for and promote more research into finding the cause, therapies and cures for Frontotemporal degeneration/dementia, in collaboration with international FTD researchers and clinicians
  • Advocate with public officials and promote public and private programs that provide appropriate, affordable and high-quality, long-term health care and social services
  • Facilitate the international exchange of ideas

We envision a world where Frontotemporal dementia is understood, effectively diagnosed, treated, cured and ultimately prevented.