World FTD Awareness Week 2017 will be held from September 24 to October 1, 2017 – it is never too early to get involved and raise awareness in your community! Through events, on the web, and through social media, constituents around the world will rally together for the third straight year to raise FTD awareness. The World FTD United group have worked hard to plan this year's campaign theme: Think it's Alzheimer's? Think Again.
By sharing messages about the symptoms and the long journey that led to a loved one's FTD diagnosis – either through video, writing, photography, sharing stories or evetns, participants will share a much-needed spotlight on a disease that still takes nearly four years to accurately diagnose. They can drive home in a very personal way an urgently needed message: not all dementia is Alzheimer's, and the most common form of dementia for those under 60 is, in fact, FTD. Participants in the week are encouraged to be creative in their messages, to identify their locations worldwide, and to use the hastags: #ThinkFTD and #EndFTD on social media.
In March 2017, the FTD Registry was launched. To find out more information, see Research.
Greg Kelly is a 60 year old man with FTD. He is riding his Harley Davidson across Australia, New Zealand, and the USA starting August 12th to raise awareness for younger-onset dementia. Find out more about this remarkable feat and how to donate to his cause via his Facebook page, or check out this media release, or his Prospectus for sponsorship.
He has been doing an incredible job raising awareness through his media appearances. Check out the following links:
- Click here to listen to a radio interview he did on a Gold Coast station 1029 Hot Tomato
- Click here to see Kell on My Gold Coast
- Click here for his interview on Logan's 101 FM.
- Click here for his interview on Channel 7's The Daily Edition
- Click here for Kell's interview on ABD Radio's Evenings with Chris Bath [go to 1:01:58]
- Click here to read an article in The Canberra Times about his trip to the nation's capital
- Click here to hear his interview on 96five Afternoons
- Click here to hear his live cross from the road
- Click here to read about his journey in The Examiner
Kell has even got his own anthem, performed by Matt McLaren featuring Alex Straker. You can buy it here with all proceeds going to Kell's fundraising efforts!
And last but not least, there is a documentary being made about Kell – check out the full version here and share it with your friends!
We are proud supporters of Kell in his journey to raise awareness and funds for FTD and other types of dementia!
The 11th International Conference for Frontotemporal Dementias will be held in Sydney in 2018! AFTDA is proud to be part of the organising committee. The conference will be help from the 11 to 14th of November 2018 at the International Convention Centre in Sydney. For more information, please download the flyer and visit the conference website. You can also follow the Twitter page for updates!
The 10th International Conference for Frontotemporal Dementias was held from August 31, 2016 to September 2, 2016 in Munich, Germany. We hosted information sessions to provide updates from the conference. Please contact us for more details.
Find out more about FTD in the media:
Is it our relationship or is it something more? Listen to caregivers describe the effect of FTD on marriage – thanks to ABC Radio National
Why some dementia patients lack empathy – from the Sydney Morning Herald